Resources for Adult CHD
- For the Public and Health Care Professionals
- Adult
Congenital Heart Association
The purpose of this organization is to educate the public, adults with
CHD, and the medical community about adult congenital heart issues through
the development of forums, newsletters, support groups and other methods
of public information.
-
Canadian Adult Congenital Heart (CACH) Network - Canada
CACHNET.ORG is home to the Canadian Adult Congenital Heart Network and
the Toronto Congenital Cardiac Centre For Adults at the University of
Toronto. Their aim is to provide comprehensive care and information to
adult patients with congenital heart disease and their care providers.
- Congenital
Heart Information Network (CHIN)
C.H.I.N. is an international organization that provides reliable information,
support services and resources to families of children with congenital
heart defects and acquired heart disease, adults with congenital heart
defects, and the professionals who work with them.
- Grown
Up Congential Heart (GUCH) Patients Association - United Kingdom
The aim of the Association is to provide support, but more importantly,
to enable full adult living for this relatively new medical community
which is growing by about 3,000 each year. They have survived as a result
of advances in surgery and medicine for congenital heart disease. However,
their disability leads to difficulties and disadvantage; they have problems
securing the essential things in life such as employment, insurance, mortgages.
Currently it is estimated that there are over 100,000 GUCH patients in
the UK.
- For Health Care Professionals
- International
Society for Adult Congenital Cardiac Disease
The International Society for Adult Congenital Cardiac Disease seeks to
promote, maintain and pursue excellence in the care of adolescents and
adults with congenital cardiac disease.The Society is dedicated to the
advancement of knowledge and training in medical disciplines pertinent
to congenital heart disease in adults.Membership is open to health professionals
interested in furthering the objectives of the Society, and who are involved
in the care of adults or adolescent patients with congenital heart disease
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