Adults with CHD - Selected References
- United States of America
- NHLBI Working group. Journal of the American College of Cardiology. 47, 2006 February.
- Proceedings
of the 32nd Bethesda Conference: Care of the Adult with Congenital Heart
Disease. Journal of the American College of Cardiology. Vol. 37,
2001: 1161-98.
- Warnes CA. Liberthson R. Danielson
GK. et.al. Task force 1: the changing profile of congenital heart
disease in adult life. Journal of the American College of Cardiology.
37(5):1170-5, 2001 Apr.
- Foster E. Graham TP Jr. Driscoll
DJ. et. al. Task force 2: special health care needs of adults
with congenital heart disease. Journal of the American College of
Cardiology. 37(5):1176-83, 2001 Apr.
- Child JS. Collins-Nakai RL. Alpert
JS. et.al. Task force 3: workforce description and educational
requirements for the care of adults with congenital heart disease. Journal
of the American College of Cardiology. 37(5):1183-7, 2001 Apr.
- Landzberg MJ. Murphy DJ Jr. Davidson
WR Jr. et.al. Task force 4: organization of delivery systems
for adults with congenital heart disease. Journal of the American
College of Cardiology. 37(5):1187-93, 2001 Apr.
- Skorton DJ. Garson A Jr. Allen
HD. Fox JM. Truesdell SC. Webb GD. Williams RG. Task force 5:
adults with congenital heart disease: access to care. Journal of
the American College of Cardiology. 37(5):1193-8, 2001 Apr.
- Child JS. Freed MD. Mavroudis C. Moodie DS. Tucker AL. Task force 9: training in the care of adult patients with congenital heart disease. Journal of
the American College of Cardiology .51(3):389-93, 2008 Jan 22.
- Webb CL. Jenkins KJ. Karpawich PP.
Bolger AF. Donner RM. Allen HD. Barst RJ. Congenital Cardiac Defects Committee
of the American Heart Association Section on Cardiovascular Disease in the
Young. Collaborative care for adults with congenital heart disease. Circulation.
105(19):2318-23, 2002 May 14.
- Britain
- Report of the British Cardiac Society
Working Party. Grown-up congenital heart (GUCH) disease: current needs and
provision of service for adolescents and adults with congenital heart disease
in the UK. Heart (British Cardiac Society). 88 Suppl 1:i1-14, 2002
Sep.
- Canada
- Therrien J. Dore A. Gersony W.
et al.. Canadian Cardiovascular Society. CCS Consensus Conference 2001
update: recommendations for the management of adults with congenital heart
disease. Part I. Canadian Journal of Cardiology. 17(9):940-59,
2001 Sep.
- Therrien J. Gatzoulis M. Graham
T. et. al. Canadian Cardiovascular Society Consensus Conference 2001 update:
Recommendations for the Management of Adults with Congenital Heart Disease--Part
II. Canadian Journal of Cardiology. 17(10):1029-50, 2001 Oct.
- Therrien J. Warnes C. Daliento
L. et. al. Canadian Cardiovascular Society Consensus Conference 2001 update:
recommendations for the management of adults with congenital heart disease
part III. Canadian Journal of Cardiology. 17(11):1135-58, 2001
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- Europe
- Deanfield J. Thaulow E. Warnes
C. et.al. Task Force on the Management of Grown Up Congenital Heart Disease,
European Society of Cardiology. ESC Committee for Practice Guidelines.
Management of grown up congenital heart disease. European Heart Journal.
24(11):1035-84, 2003 Jun.
Bacterial Endocarditis
- Alphonso N. Dhital K. Chambers J. Shabbo
F. Gerbode's defect resulting from infective endocarditis. European Journal
of Cardio-Thoracic Surgery. 23(5):844-6, 2003 May.
- Ando M. Sakai A. Nakamura K. Iwata
Y. Sanae T. Infective endocarditis affecting both systemic and pulmonary circulations
predisposed by a ventricular septal defect. Japanese Journal of Thoracic
& Cardiovascular Surgery. 48(7):451-4, 2000 Jul.
- Bulat DC. Kantoch MJ. How much do
parents know about their children's heart condition and prophylaxis against
endocarditis?. Canadian Journal of Cardiology. 19(5):501-6, 2003 Apr.
- Diab KA. Richani R. Al Kutoubi A. Mikati
M. Dbaibo GS. Bitar FF. Cerebral mycotic aneurysm in a child with Down's syndrome:
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- Dodo H. Child JS. Infective endocarditis
in congenital heart disease. Cardiology Clinics. 14(3):383-92, 1996
Aug.
- Gowda RM. Ansari AW. Khan IA. Complete
endocardial cushion defect (complete atrioventricular canal) manifested in
adult life by Streptococcus mitis endocarditis of the common atrioventricular
valve. International Journal of Cardiology. 89(1):109-10, 2003 May.
- He QC. Wang YQ. Zhong BT. Chen ZL.
Guo JG. Ye WW. Right ventricular and septal anomalies complicated by subacute
bacterial endocarditis. Texas Heart Institute Journal. 27(4):401-4,
2000.
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International Journal of Cardiology. 101(2):285-91, 2005 May 25.
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T. Pees C. Uhlemann F. Lange PE. Knowledge, compliance and practice of antibiotic
endocarditis prophylaxis of patients with congenital heart disease. Pediatric
Cardiology. 24(4):344-9, 2003 Jul-Aug.
- Kohli V. Infective endocarditis. Indian
Journal of Pediatrics. 69(4):333-9, 2002 Apr.
- Li W. Somerville J. Infective endocarditis
in the grown-up congenital heart (GUCH) population. European Heart Journal.
19(1):166-73, 1998 Jan.
- Morris CD. Reller MD. Menashe VD.
Thirty-year incidence of infective endocarditis after surgery for congenital
heart defect. JAMA. 279(8):599-603, 1998 Feb 25.
- Niwa
K. Nakazawa M. Miyatake K. Tateno S. Yoshinaga M. Japanese Circulation Society
(JCS) Joint Working Groups for Guidelines for Management of Infective Endocarditis.
Japanese Society of Pediatric Cardiology and Cardiac Surgery Joint Working
Groups for Guidelines for Prophylaxix, Diagnosis and Management of Infective
Endocarditis in Patients with Congenital Heart Disease. Survey of prophylaxis
and management of infective endocarditis in patients with congenital heart
disease: Japanese nationwide survey.Circulation Journal. 67(7):585-91,
2003 Jul.
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Schumacher BA. Endocarditis after nipple piercing in a patient with a bicuspid
aortic valve. Annals of Thoracic Surgery. 71(4):1365-6, 2001 Apr.
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Voelker W. Steinhilber B. Schulze HJ. Huppert P. Hoffmeister HM. Tricuspid
valve endocarditis due to a jet lesion detected by echocardiography in a 27-year
old man with congenital ventricular septal defect. Journal of Cardiovascular
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Other Selected References
- Alderman LM. At risk: adolescents and
adults with congenital heart disease. DCCN - Dimensions of Critical Care
Nursing. 19(1):2-12; quiz 13-4, 2000 Jan-Feb.
- Alvarez N. Prieur T. Connelly M. The
ten most commonly asked questions about management of congenital heart disease
in adults. Cardiology in Review. 10(2):77-81, 2002 Mar-Apr.
- Artis S, Ramirez,
MJ. Ferencz, C. The social fate of the cardiac child. Cardiac Rehabilitation.
4(4): 67-70, 1974 Winter.
- Canobbio MM. Issues in the care of
adults with congenital heart disease. Nursing Clinics of North America.
29(2):xi-366, 1994 Jun.
- Canobbio MM. Day MJ. The role of the
clinical specialists in an adult congenital heart disease program. Nursing
Clinics of North America. 29(2):357-66, 1994 Jun.
- Daebritz SH. Update in adult congenital cardiac surgery. Pediatric Cardiology. 28(2):96-104, 2007 Mar-Apr.
- Diller GP. Dimopoulos K. Okonko D. et. al. Exercise intolerance in adult congenital heart disease: comparative severity, correlates, and prognostic implication. Circulation. 112(6):828-35, 2005 Aug 9.
- Garson A Jr. Health care policy for
adults with congenital heart disease. The patient, the physician, and society.
Circulation. 86(3):1030-2, 1992 Sep.
- Gatzoulis MA. Adult congenital heart disease: education, education, education. Nature Clinical Practice Cardiovascular Medicine. 3(1):2-3, 2006 Jan.
- Green A. Outcomes of congenital heart
disease: a review. Pediatric Nursing. 30(4):280-4, 2004 Jul-Aug.
- Kamphuis M, Vliegen HW, Vogels T, et
al. The need for cardiac follow-up in adults with mild congenital cardiac
disease Cardiology in the Young. 12 (5): 474-478, Oct 2002.
- Kools S. Tong EM. Hughes R. et.al.
Hospital experiences of young adults with congenital heart disease: divergence
in expectations and dissonance in care. American Journal of Critical Care.
11(2):115-25; quiz 126-7, 2002 Mar.
- Koster NK. Physical activity and congenital
heart disease. Nursing Clinics of North America. 29(2):345-56, 1994
Jun.
- Kovach JA. Preventive and primary
care of the adult with congenital heart disease. ACC Current Journal Review.
10(4):94-8, 2001 Jul-Aug.
- Lip GYH, Lane DA,
Millane TA, Tayebjee MH. Psychological interventions for depression in adolescent
and adult congenital heart disease. The Cochrane Database of Systematic
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- Miner PD. Canobbio MM. Care of the
adult with cyanotic congenital heart disease. Nursing Clinics of North
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- Ruiz G. The search for adults with congenital heart disease. Cardiology. 35(4): 2006.
- Skorton DJ. Garson A Jr. Training in
the care of adult patients with congenital heart disease. Cardiology Clinics.
11(4):717-20, 1993 Nov.
- Somerville J. Grown-up congenital heart
disease--medical demands look back, look forward 2000. Thoracic & Cardiovascular
Surgeon. 49(1):21-6, 2001 Feb.
- Somerville J. Management of adults
with congenital heart disease: an increasing problem. Annual Review of
Medicine. 48:283-93, 1997.
- Somerville J. Near misses and disasters
in the treatment of grown-up congenital heart patients. Journal of the
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- Therrien J. Webb G.Clinical update
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- Webb GD. Challenges in the care of
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- Webb GD. The Edgar Mannheimer Lecture. Improving the care of patients with congenital heart disease: an adult focus. Cardiology in the Young. 14(1):6-14, 2004 Feb.
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| Reproductive
Care/Recurrence in Offspring |
- Baumgartner H. Reproductive issues
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2001 Apr.
- Canobbio MM. Reproductive issues for
the woman with congenital heart disease. Nursing Clinics of North America.
29(2):285-97, 1994 Jun.
- Colman JM. Sermer M. Seaward PG. Siu
SC. Congenital heart disease in pregnancy. Cardiology in Review. 8(3):166-73,
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- Rogers P. Mansour D. Mattinson A. O'Sullivan JJ. A collaborative clinic between contraception and sexual health services and an adult congenital heart disease clinic.Journal of Family Planning & Reproductive Health Care. 33(1):17-21, 2007 Jan.
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Lindsay G. Allen M. A possible increase in the incidence of congenital heart
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Adverse neonatal and cardiac outcomes are more common in pregnant women with
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- Siu SC. Sermer M. Harrison DA. et.al.
Risk and predictors for pregnancy-related complications in women with heart
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